Hi my name is Delaid and I am 45 years old and amongst many other things diagnosed throughout my lifetime the most recent was a diagnosis of ADHD in September of 2019. The diagnosis of ADHD in my case is quite interesting from an objective perspective and I thought it might be of interest to other people who are late in life receiving an ADHD diagnosis.
Let me go back a few years to when I was 13 years old when I was diagnosed and treated for narcolepsy with dexamphetamine (Adderall in the USA). In July 2018 this stimulant therapy was ceased due to complications with other health conditions which appeared around that time. Absolutely nothing prepared me for what was about to occur when the stimulant therapy ceased.
The first thing I noticed were tasks that I previously could tackle on my own and competently were falling to the wayside, to the point that I found myself in bed with Netflix on yet not watching anything just inside my head panicking about what the hell I was supposed to do and what was happening.
I was not able to articulate to my psychiatrist or my medical team what was occurring because I had never experienced anything like this. All I could communicate was that in the last six to nine months I felt my depression was becoming so bad that I was unable to do even the most basic tasks.
From July 2018 though to June 2019 I had multiple admissions for severe depression to a mental health unit. Each time I would describe simply that my depression was getting worse. Finally in June 2019 my husband advocated for me confirming that there was just not usual depression.
Let me give you some examples of what was presented to my doctor:
● In the space of about six to nine months piles of paper that contained bills, important documents such as birth certificates mixed up with all sorts of other documents appeared
● Baskets of unfolded laundry
● Family members asking me for items and I had no idea where they were
● Constantly running out of food in the house as I would forget to do the shopping
● My home had become chaos and despite support from family members it would return to chaos
● I was being charged fees for missing medical appointments
● Some of my medical team discharged me as I was not turning up and therefore losing out on much needed support
● I was constantly re-purchasing items because it was easier than the anxiety of searching for them
● Hours spent in bed distraught as to how to fix this despite being surrounded with to-do lists
● Yet I could plan a perfect snowboarding holiday & this seeming paradox really confused me and added to my deepening depression.
● I would get deeply focused on an activity and easily angered if interrupted.
● I couldn’t explain where hours of time had gone and got very distraught if asked about it
It was noted that although there were elements of these aspects before my medication was discontinued, this was a huge change in my life that was noticeable by my husband.
During my June 2019 Admission my psychiatrist performed what I describe as a “reverse diagnosis”. I was prescribed Modafinil and monitored for 6 months and provided information on ADHD, Executive Dysfunction, Hyperfocus and Hyperactivity.
Whilst Modafinil is not as effective for me as dexamphetamine, it has fewer side effects and has made a huge difference to my life. It treats both ADHD and narcolepsy. Immediately I was able to manage my day to day appointment schedule, which was a huge win for me. This meant no more missed appointment fees and I could rebuild my support network, including a peer ADHD life coach who has been awesome.
I was no longer confused why I could organise some activities and not others, which lifted my mood. I joined an ADHD Discord group, and rather than sit in bed in angst I surrounded myself with support and ideas and I am slowly overcoming the challenges that medication doesn’t resolve.
I gained more confidence in asking family members (all adults) to take responsibility for their own important belongings. I accepted that sometimes it is just easier to order a new certificate if needed than to put myself through the stress of finding it, and then I put the new certificate in its new home. I have learned the art of throwing stuff out, ruthlessly.
Yes my house is still Chaos. There are still baskets of laundry to be put away. There is still decluttering to be done. Each day I do at least one small thing to make my home a cleaner, more organised space. Yes some days it still gets me down, however I find the use of photographs really helps me see the progress.
In September 2019 I was formally diagnosed with ADHD with my psychiatrist adding that I place the “H” in ADHD. 😀
If you’d like to connect with Delaid,
she can be found as @TheRealDelaid on Twitter.
ADHD Voices is a series dedicated to sharing the stories of folks like you and me who have ADHD. Posts in the series are written by guest authors, sharing windows into their lives and struggles, written by them, for you and me. If you’d like to share your story, please contact me on social media or through my email, ADHDsurprise @ gmail.com
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